Helpful Links

Over the past three weeks we have found a number of links to be incredibly helpful as we work through the different stages of initial fear, denial and anger before moving towards acceptance and excitement for the future.

ARC are a low-profile charity set up specifically to support and assist parents going through antenatal screenings. Specifically, but not limited to, those who have received surprising or worrying results.

  • REACH – Association for Children with upper limb deficiency:

We reached out to this charity as soon as we received our positive diagnosis that the missing hand does not seem to be part of a more sinister problem. We have signed up for membership and are eagerly awaiting our welcome back, and the contact details for our local buddy family. The website has some information for parents, through all stages of their child’s development and offers reassurance and advice.

I’ve yet to fully explore the wealth of information, experiences and support I’ve discovered in this US-based website. But will continue to explore over the next weeks and months. It’s packed full of heart-warming and reassuring stories to allay fears and give hope.

A US-based non profit organisation set up to raise awareness and to celebrate children with a variety of limb differences.

  • Follow our little but fierce journey on Facebook, from scan to beyond.




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